Sunday, November 23, 2008
taking some more laps
We have made real progress with Thomas this year. He has ADHD and now controls it with drugs. The drugs are a life saver. He is a different person. The main side effect for him is that it is hard for him to sleep. We are working on getting an adjustment to his medication. Hopefully he is "out of the woods". Philip on the other hand is in a deep hole. We think he might be dyslexic. If anyone knows about this let me hear from you. We are on a list for a clinic that does diagnostic work on many levels. It may take until March to get an appointment. I continue to work with him on his reading program (fast forwards). It helps but only a little. He really still can not read. It is a painful process. I think I will try to get him a full QEEG (brain map). I would love to do hyperbaric oxygen therapy with him but insurance will not pay for it. If I can get a PET scan then I will at least know if he has a blood flow problem in his brain. Hyperbaric oxygen therapy helps improve blood flow to the brain. Maybe we can get the insurance company to pay for a PET? Basically it's another lap around a very big track...someday we will figure out something that will help him...at least a little! I don't consider him a "problem child". He is a child with a problem and it's our job to figure out how to help him. He is a funny kid. He is 100% normal in some ways, and really delayed in other ways (like reading and language). He has great strength and coordination, but very weak hands. I know that there is something that can be done for him. We just have not figured it out yet! The thing I find very frustrating about Germany is most doctors do not dig for answers. You have to push them to dig. I’m not a doctor so it takes me so long just to figure out what direction we can look. It’s like they give up on him. They think, oh he was adopted. We do not know his medical history. Maybe he was drug exposed or had a bad birth. Anyway, we can not help him. But I do not buy this! There are clues to problems that can be treated. You may never know how he got into this hole, but you can sure as #*&§”``!!! help treat some of his symptoms.